I've kept this to myself for too long. I feel that if I have a public forum to share information with people about this hereditary, often undiagnosed disease, then it is my responsibility to do so.
Bicuspid Aortic Foundation
Cedars-Sinai - Bicuspid Aortic Valve Disease
Cleveland Clinic - Bicuspid Aortic Valve Disease
Valve Replacement Forums
Mayo Clinic - Aortic Dissection
Cleveland Clinic - Aortic Aneurysm
I hope you find these links helpful. I will try to add more in the next day or two.